Breaking The Mold

Note: This is a previous post from my other site about where we have started in our journey with Autism.  In a few more posts I will be caught up to where we are now with all our successes!  =)

I have figured out why I’ve been having such a hard time with Hunter the last couple of days.  He’s stressing about this stranger coming into the house.  He’s worried about him having to go into his room.  He’s concerned about his Lego Town and it’s people being disturbed.  Then there’s the fact that Tevis and I are rushing around trying to get everything done.  That DOES NOT help matters at all.  That alone sends his anxiety through the roof.  Just a couple more days of this and it will be over and we can get back to our version of normal.
I wanted to give you a little insight into Hunter’s thinking.  Yesterday, Destiny came running into Tevis’s office where I was on the computer.  “Mom, he punched me!”  This was followed by me asking Hunter if, in fact, he punched her.  He proceeded to tell me (yelling of course), “No, I didn’t punch her.  I just wacked her!”  There is apparently a difference.  So, I asked him.  “Hunter, is punching someone different from wacking them?”  He got flustered and wouldn’t answer me because I should totally understand.  In his mind, though, , there is a HUGE difference.  Granted, I haven’t been able to get the answer from him as to why, yet.  But, I will.
I wanted to give you also a little insight into where he is at.  Here’s a break down of what we deal with and why he struggles so:

Composite                                              Percentile
GAC (General Adaptive Composite)               .4%

Conceptual (Communication, Functional
academics, Self-direction)                            .5%

Social (Leisure, Social)                                 .8%

Practical (Community use, Home living
Health & safety, Self-care)                           .6%

Now, granted some of those have come up a little since this testing.  But here’s a breakdown of what they mean.
GAC-This is his overall average of the other 3.  He basically has less than 1% adaptability skills.  It is more than that now since he’s been in therapy.  But, change doesn’t work AT ALL for him.  You need to give him a heads up as to what is going to happen.  

Conceptual- Does not consistently greet others, inconsistently looks at other’s faces when they are talking, has difficulty paying attention during conversations with others, frequently does not acknowledge when other are talking to him, has difficulty with functional academic skills including reading/writing, unable to stop fun activity without complaining, has difficulty working independently, has difficuly controlling temper/anger in social situations, has difficulty controlling feeling when he does not get his way, is easily frustrated if tasks are challenging or disliked, frequently has temper tantrum if asked to stop fun activity.

Social- Has difficulty engaging in fun activities and does not entertain self, frequently has difficulty  following rules in games/fun activities or waiting for his turn, has difficulty making and maintaining friendships, frequently stands too close to others during conversations/interaction, does not state his feelings or acknowledge feeling of others, doe not consistently apologize to others or move out of another person’s way without being asked

Practical- These were a lot of self care things like ordering his own meal at a restaurant, doesn’t help with clean up at home, etc…

You would never know that he has a neurological disorder just from looking at him.  But because of his behavior, at times, people assume that we’re not good parents and need to parent better.  This assumption alone creates a TON of stress for parents of autism.  It’s tiring to have to try to explain everything all the time.  Behavior wise he functions as a five year old.  Yet, on other levels he can function as a 12 year old.  That’s why Aspie’s are called Little Professors.  They know so much about stuff and can intellectually talk about things that they are interested in.  Yet, simple things or social things are hard for them to understand.  But ya know, through all this we are able to see things from a different perspective.  It’s neat to try to see things through his eyes.  A lot of the greatest inventors were Aspie’s.  To me that is AWESOME!  They are out of the box thinkers.  And it’s normally those type of people who break the molds.  I like that!  God didn’t create us in a mold so why do we all try so desperately to fit into one?  Be the you God designed you to be.  =) Be blessed!


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